Not dead, no!

It’s been a while and someone emailed me to check if I was dead!  Tee hee hee, No, not dead but thanks for the thought.

The thing is that I’ve been a bit busy.  Ok, I’ve had a cold which is now a thing of the past and this damned shoulder pain has been bugging me for 2-3 weeks but on the whole SLE is not bitchin about too much.  Haven’t been shootin’ much because of it and my trigger finger is itchy!  I have enrolled in a photography course and gone through nearly 3000 clicks on a new DSLR…..a Nikon D7200.  I have to make up for the lack of gun shooting although the energy levels don’t allow me to go out and practice as much as I would like to.  Lethargy and Sir Reynaud are ever present, on most days.  The cold doesn’t help and my wolf’s partner, Sir Reynaud, makes sure I don’t forget about him!

Just today I was curious so I used the digital thermometer to check the temperature of my cyanosed fingers.  It read 32 degrees……then I heard it say, please check for signs of life!!

Anyways, I’m off to bed now.  Photo attached below is one of my HDRs which can be found on my Facebook page KJHolmes Photography as well.  Oh, by the way, let me know what you think of the watermark I have created.

Until the next one, I hope you all keep well.

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Kev Sign

December 2013

This was the last time I was admitted, back in 2013.  Pericarditis, a flare up of SLE.  I have put downa couple of thoughts back then which I have recently discovered and decided to publish.

 

I was discharged on the 31st December with a diagnosis, Systemic Lupus!  Looking back I have recalled a number of other flare ups which have occurred along the years, some of which, 15 years before.  I realised how diverse the signs and symptoms of this disease are and understood why, like many, I have only been diagnosed now.

 

I wish all of your followers a very fruitful 2016.  To you, fellow Lupies, I wish strength and will to fight the wolf.  There’s only one rule, and that’s NEVER to give up.

 

Kev Sign

Lupus Support Group – Malta

As a follow up to my previous post of June 23rd, I have news to share!

The meeting of the Lupies was a great success.  There was 10 of us there, 8 of which suffer from SLE.  We shared our experiences and also discussed the possibility or reviving a support group which was active some time ago.  Since then we have started two groups on Facebook.  One is an open group which anyone can join.  The aim of this is to reach out to other Lupies, spread the word, increase awareness, and the like.  The other is a closed group for local Lupies only.  People can join this through an invite but must be affected by Lupus.  A private message to the admin of the open group will start the ball rolling for those who want to join the secret group!

I am now off to translate some stuff into Maltese which will go in the open group.

Oh, nearly forgot.  It’s Summer here, so please, especially if you’re a Lupie, AVOID THE SUN!!

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Kev Sign

We’re meeting!

It has been contemplated for some time but now it will happen!

People who suffer from Systemic Lupus Erythmatosus (Lupus for short) who live in Malta or it’s sister island Gozo, are meeting to get to know each other, share information and support each other.

Date and time:  Monday, July 6th at 5:30pm
Venue:  Tramici Coffee shop, 91/93, Naxxar Road, Birkirkara, Malta (next to Big Bon, Behind the St. Theresa Church)

If you’re one of us, we really really hope to se you there.